World Federation of Hemophilia USA
100% goes to programs $0 to raise $100 Growing revenue
World Federation of Hemophilia USA is a 501(c)(3) organization based in Albany, New York, registered in 1997, with $1,095,526,264 in FY2024 revenue. CharityIndex grades it A, and it directs about 100% of spending to programs.
Pmb 142 911 Central Ave, Albany, NY, 12206 EIN 16-1513923 Since 1997
Revenue (FY2024)
$1.1B
▼ 3.2% vs prior year
Diseases median: $206K
Expenses (FY2024)
$1.2B
Net assets
$377.3M
Employees
0
CharityIndex rating
One independent A+ to F grade from four published criteria, each scored separately from IRS filings and combined by weight.
A
A+Program efficiency40% of the rating100% to programs · $0 to raise $100
Measures how much of every dollar spent actually reaches programs, plus what it costs to raise $100 of donations. The worse of the two measures sets the letter (85%+ to programs is an A; under $15 to raise $100 is an A), averaged over the three most recent filings. For World Federation of Hemophilia USA: 100% to programs · $0 to raise $100 earns a A+ on this criterion. See the exact thresholds →
B+Financial health25% of the rating4 mo reserves · -5% margin
Measures whether the organization is built to last: how many months its reserves would cover expenses (3+ months earns an A-range score, but hoarding 5+ years of budget is capped) and whether it runs a surplus or a deficit. For World Federation of Hemophilia USA: 4 mo reserves · -5% margin earns a B+ on this criterion. See the exact thresholds →
BGovernance25% of the rating4 of 6 checks met
Checks how the organization is run, from its own Form 990: an independent board majority, a board of five or more, conflict-of-interest, whistleblower and document-retention policies, and independently audited financials. The share of disclosed checks that pass sets the letter. For World Federation of Hemophilia USA: 4 of 6 checks met earns a B on this criterion. See the exact thresholds →
A+Transparency10% of the rating5 of 5 disclosure signals
Counts five disclosure signals: a recent filing, a mission statement, program descriptions, a listed website, and the full expense breakdown. More disclosure, better letter. For World Federation of Hemophilia USA: 5 of 5 disclosure signals earns a A+ on this criterion. See the exact thresholds →
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Mission
Affiliated to the world federation of hemophilia an international charitable organization based in montreal the mission of the world federation of hemophilia usa is to advance the global mission of wfh within the us to improve and sustain care for people with inherited bleeding disorders around the world
What they do
The wfh training and education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. in accordance with the collaboration agreement between wfh usa and the wfh wfh usa periodically grants contributions received to support the wfh training and education programs to the wfh as needed to carry out the wfhs responsibilities with respect to the wfh training and education program.
The wfh research and data collection program includes the annual global survey the world bleeding disorder registry the gene therapy registry and their accompanying education and capacity-building programs. the objective of this program is to provide national member organizations nmos and hemophilia treatment centers htcs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. in accordance with the collaboration agreement between the wfh usa and the wfh wfh usa periodically grants contributions received to support the wfh research program to the wfh as needed to carry out the wfhs responsibilities with respect to the wfh research program.
Other programs include the awareness building and travel fund. this initiative is dedicated to increasing awareness about bleeding disorders in the united states and worldwide.
Contact & location
- Address
- Pmb 142 911 Central Ave, Albany, NY, 12206
- City
- Albany
- State
- New York
- Subcategory
- Birth Defects & Genetic Diseases
- Phone
- …
- Website
- …
Financial trends
Revenue grew from $398.5M (FY2020) to $1.1B (FY2024) across 5 reported years.
Financial snapshot
Financial health & position (FY2024)
Liabilities $345KNet assets $377.3M
Operating margin
-5.4%
Spent more than it raised in the latest fiscal year.
Total assets
$377.6M
Total liabilities
$345K
Net assets
$377.3M
Salaries & benefits
$0
0% of expenses
Board members
12
12 independent
Financials by year
| Fiscal year | Revenue | Expenses | Net assets | Total assets | Form |
|---|---|---|---|---|---|
| 2024 | $1,095,526,264▼3.2% | $1,154,898,723▲7.8% | $377,299,575▼13.6% | $377,644,851▼13.6% | 990 |
| 2023 | $1,131,296,825▲65.2% | $1,070,872,912▲56.4% | $436,649,597▲38351% | $436,959,567▲23437% | 990 |
| 2022 | $684,615,118▼16.8% | $684,510,863▼16.8% | $1,135,588▲11.8% | $1,856,452▼7.8% | 990 |
| 2021 | $822,953,008▲107% | $822,759,749▲107% | $1,015,873▲17.8% | $2,014,564▲48.1% | 990 |
| 2020 | $398,517,418 | $398,297,253 | $862,101 | $1,360,104 | 990 |
Original Form 990 PDFs (the Form column) are served by ProPublica Nonprofit Explorer, as filed with the IRS. Create a free account to download the CSV report.
Leadership & compensation (FY2024)
| Name | Title | Hours/week | Compensation |
|---|---|---|---|
| Alain Baumann | Secretary Exec Director | 4 | — |
| Amy Dunn | Bod Member | 1 | — |
| Dawn Rotellini | Bod Member | 1 | — |
| Eric Stolte | Bod Member | 1 | — |
| Frank Schnabel IV | Bod Member | 1 | — |
| Glenn Pierce | Bod Member | 1 | — |
| Jeff Blake | Bod Member | 1 | — |
| Joanne A Davis | Bod Member | 1 | — |
| Len Valentino | President | 1 | — |
| Mark Skinner | Bod Member | 1 | — |
| Paula Bell | Bod Member | 1 | — |
| Philip Kucab | Vice-president | 1 | — |
| Rob Maloney | Bod Member | 1 | — |
| Sean Singh | Treasurer | 1 | — |
Grants received · $398K total
12 grants to World Federation of Hemophilia USA totaling $398K, reported by foundations on their Schedule I filings.
| Grantmaker | Purpose | Year | Amount |
|---|---|---|---|
| American Online Giving Foundation Inc | General support | 2023 | $7,283 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2023 | $6,250 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2022 | $45,100 |
| American Online Giving Foundation Inc | General support | 2022 | $11,113 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2021 | $91,200 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2021 | $91,200 |
| American Online Giving Foundation Inc | General support | 2021 | $8,283 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2020 | $53,800 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2019 | $41,300 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2018 | $21,300 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2017 | $10,800 |
| Childrens Hospital Medical Center of Akron | Hemophilia treatment for all | 2016 | $10,000 |
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Frequently asked questions
- Is World Federation of Hemophilia USA a legitimate nonprofit?
- Yes. World Federation of Hemophilia USA is a 501(c)(3) organization registered with the U.S. Internal Revenue Service under EIN 16-1513923, based in Albany, New York. Donations are tax-deductible.
- What is World Federation of Hemophilia USA's EIN?
- World Federation of Hemophilia USA's Employer Identification Number (EIN) is 16-1513923.
- How much revenue does World Federation of Hemophilia USA report?
- World Federation of Hemophilia USA reported $1,095,526,264 in total revenue on its fiscal year 2024 IRS Form 990 filing.
- How much of World Federation of Hemophilia USA's spending goes to programs?
- World Federation of Hemophilia USA spends about 100% of its total expenses on programs, based on its latest IRS Form 990.
- What financial grade does World Federation of Hemophilia USA have?
- CharityIndex grades World Federation of Hemophilia USA A, based on program efficiency and fundraising cost.
- How much does World Federation of Hemophilia USA's highest-paid employee make?
- The highest reported compensation on World Federation of Hemophilia USA's latest Form 990 is $0, paid to Alain Baumann (Secretary Exec Director).
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Data for World Federation of Hemophilia USA (EIN 16-1513923) comes from the IRS Business Master File and e-filed Form 990 returns, via CharityIndex. Figures reflect what the organization reported to the IRS for each fiscal year.