Amyotrophic Lateral Sclerosis Assn
69% goes to programs $29 to raise $100 Strong reserves Growing revenue
Amyotrophic Lateral Sclerosis Assn is a 501(c)(3) organization based in Saint Paul, Minnesota, registered in 1990, with $68,583,051 in FY2024 revenue. CharityIndex grades it B+, and it directs about 69% of spending to programs.
1919 University Ave W Ste 175, Saint Paul, MN, 55104 EIN 13-3271855 Since 1990
Revenue (FY2024)
$68.6M
▼ 45.8% vs prior year
Diseases median: $206K
Expenses (FY2024)
$82.2M
Net assets
$89.0M
Employees
528
CharityIndex rating
One independent A+ to F grade from four published criteria, each scored separately from IRS filings and combined by weight.
B+
BProgram efficiency40% of the rating69% to programs · $29 to raise $100
Measures how much of every dollar spent actually reaches programs, plus what it costs to raise $100 of donations. The worse of the two measures sets the letter (85%+ to programs is an A; under $15 to raise $100 is an A), averaged over the three most recent filings. For Amyotrophic Lateral Sclerosis Assn: 69% to programs · $29 to raise $100 earns a B on this criterion. See the exact thresholds →
C+Financial health25% of the rating13 mo reserves · -20% margin
Measures whether the organization is built to last: how many months its reserves would cover expenses (3+ months earns an A-range score, but hoarding 5+ years of budget is capped) and whether it runs a surplus or a deficit. For Amyotrophic Lateral Sclerosis Assn: 13 mo reserves · -20% margin earns a C+ on this criterion. See the exact thresholds →
A+Governance25% of the rating6 of 6 checks met
Checks how the organization is run, from its own Form 990: an independent board majority, a board of five or more, conflict-of-interest, whistleblower and document-retention policies, and independently audited financials. The share of disclosed checks that pass sets the letter. For Amyotrophic Lateral Sclerosis Assn: 6 of 6 checks met earns a A+ on this criterion. See the exact thresholds →
A+Transparency10% of the rating5 of 5 disclosure signals
Counts five disclosure signals: a recent filing, a mission statement, program descriptions, a listed website, and the full expense breakdown. More disclosure, better letter. For Amyotrophic Lateral Sclerosis Assn: 5 of 5 disclosure signals earns a A+ on this criterion. See the exact thresholds →
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Mission
The mission of the als association is to make als livable and cure it.
What they do
The als association develops awareness and understanding of als and the work of the association among the general public, healthcare professionals, the scientific community and elected and other government officials. the als association's advocacy efforts help secure federal and state funding in support of als research and support for people living with als. the advocacy efforts include advances in legislation to help those living with als navigate insurance and other government programs.
Research programs - the association funds scientific research grants to doctors/scientists to find the cause and cure of amyotrophic lateral sclerosis (als).
Contact & location
- Address
- 1919 University Ave W Ste 175, Saint Paul, MN, 55104
- City
- Saint Paul
- State
- Minnesota
- Subcategory
- Nerve, Muscle & Bone Diseases
- Phone
- …
- Website
- …
Financial trends
Revenue grew from $24.0M (FY2013) to $68.6M (FY2024) across 12 reported years.
Financial snapshot
Financial health & position (FY2024)
Liabilities $18.3MNet assets $89.0M
Operating margin
-19.9%
Spent more than it raised in the latest fiscal year.
Total assets
$107.2M
Total liabilities
$18.3M
Net assets
$89.0M
Salaries & benefits
$43.3M
53% of expenses
Board members
25
25 independent
Financials by year
| Fiscal year | Revenue | Expenses | Net assets | Total assets | Form |
|---|---|---|---|---|---|
| 2024 | $68,583,051▼45.8% | $82,239,637▼16.8% | $88,974,972▼9.3% | $107,245,128▼16.1% | 990 |
| 2023 | $126,450,238▲128% | $98,839,577▲17.4% | $98,132,226▲52.8% | $127,891,549▲35.4% | 990 |
| 2022 | $55,567,608▲39.6% | $84,199,819▲87.7% | $64,234,465▼29.5% | $94,445,022▼4.0% | 990 |
| 2021 | $39,792,803▲13.3% | $44,852,298▲16.7% | $91,089,833▼2.1% | $98,343,083▼1.9% | 990 |
| 2020 | $35,112,517▼5.2% | $38,436,196▼8.1% | $93,069,685▲3.2% | $100,284,898▲2.3% | 990 |
| 2019 | $37,031,804▲36.8% | $41,808,503▲19.8% | $90,196,292▼0.3% | $98,033,652▲1.8% | 990 |
| 2018 | $27,065,702▲9.7% | $34,890,213▼7.7% | $90,438,715▼6.2% | $96,316,713▼3.3% | 990 |
| 2017 | $24,669,735▼20.1% | $37,818,211▲8.1% | $96,447,890▼7.7% | $99,633,005▼9.8% | 990 |
| 2016 | $30,879,067▲20.4% | $34,974,730▼1.4% | $104,468,596▼1.5% | $110,397,924▼2.7% | 990 |
| 2015 | $25,645,150▼81.5% | $35,461,862▼9.4% | $106,041,180▼11.5% | $113,419,744▼13.2% | 990 |
| 2014 | $138,340,559▲476% | $39,122,372▲84.9% | $119,760,116▲487% | $130,622,674▲433% | 990 |
| 2013 | $24,030,687 | $21,164,365▲6.9% | $20,400,390▲16.6% | $24,512,086▲22.2% | 990 |
| 2012 | — | $19,796,581▲25.1% | $17,502,194 | $20,059,969▼1.0% | 990 |
| 2011 | — | $15,824,207▲13.4% | $17,495,383▲26.0% | $20,256,339▲14.2% | 990 |
| 2010 | — | $13,958,388 | $13,888,033 | $17,742,395 | 990 |
Original Form 990 PDFs (the Form column) are served by ProPublica Nonprofit Explorer, as filed with the IRS. Create a free account to download the CSV report.
Leadership & compensation (FY2024)
Highest-paid: Calaneet Balas — $491,499 (0.60% of total expenses)
| Name | Title | Hours/week | Compensation |
|---|---|---|---|
| Calaneet Balas | President and Ceo | 37.5 | $491,499 |
| Greg Mitchell | Chief Financial Officer | 37.5 | $288,086 |
| Patrick Reedy | Chief Development Officer | 37.5 | $270,892 |
| Dean Feener | Chief Information & Technology Officer | 37.5 | $264,616 |
| Brian Frederick | Chief Marketing & Communications Officer | 37.5 | $250,253 |
| Lance Slaughter | Svp Strategic Alliances & Governance | 37.5 | $245,671 |
| Jennifer Hjelle | Chief Community Engagement Officer | 37.5 | $244,313 |
| Vickie Lobello | Senior Vice President Organizational Change | 37.5 | $237,001 |
| Kuldip Dave | Senior Vice President Research | 37.5 | $232,488 |
| Nicole Eck | Chief Strategy Officer | 37.5 | $231,124 |
| Kimberly Harding-maginnis | Senior Vice President Care Services | 37.5 | $221,492 |
| Keith Gary | Vice President Mission Acceleration | 37.5 | $219,020 |
| Neil Thakur | Chief Mission Officer | 37.5 | $195,440 |
| Annette Bowman | Trustee | 2 | — |
| Bernie Zipprich | Trustee | 2 | — |
| Christi L Kolarcik Phd | Trustee (thru 07/24) | 2 | — |
| Chris Tonniges | Trustee | 2 | — |
| Connie Houston | Trustee | 2 | — |
| Danielle Boisvert | Trustee | 2 | — |
| David Van De Riet | Trustee | 2 | — |
Top vendors & contractors (FY2024)
| Contractor | Services | Paid |
|---|---|---|
| A New Direction Inc | Supportive Care | $684,166 |
| Barnes & Thornburg LLP | Attorney (legal Services) | $368,718 |
| Yes& Holdings LLC | Professional Services It | $210,300 |
| Beacon Hill Solutions Group LLC | Temporary Help | $202,964 |
| Faegre Drinker Biddle & Reath LLP | Lobbying Consulting | $195,300 |
Grants received · $16.7M total
266 grants to Amyotrophic Lateral Sclerosis Assn totaling $16.7M, reported by foundations on their Schedule I filings — showing the 15 most recent.
| Grantmaker | Purpose | Year | Amount |
|---|---|---|---|
| Paypal Charitable Giving Fund | General support | 2024 | $2,121,406 |
| American Online Giving Foundation Inc | General support | 2024 | $485,745 |
| United Way of Greater St Louis Inc | Ccs-health and well-being; all-health and well-being; ttp-health and well-being | 2024 | $165,765 |
| American Endowment Foundation | Medical research | 2024 | $112,850 |
| Charities Aid Foundation America | Charitable donation | 2024 | $82,898 |
| Ayco Charitable Foundation | Community & human services | 2024 | $54,100 |
| The Us Charitable Gift Trust | For recipient's exempt purpose | 2024 | $38,500 |
| Raymond James Charitable Endowment Fund | General support | 2024 | $29,400 |
| Greater Cincinnati Foundation | Programatic support | 2024 | $25,800 |
| Greater Cincinnati Foundation | Programatic support | 2024 | $25,800 |
| Minneapolis Foundation | Donor advised, health | 2024 | $18,500 |
| Ascendium Education Solutions Inc | Triple your impact match 2024 | 2024 | $17,085 |
| Sentara Health | 2023 walk to defeat als tidewater | 2024 | $15,000 |
| San Antonio Area Foundation | General support | 2024 | $15,000 |
| Impactassets Inc | General support | 2024 | $12,500 |
Grants made · $8.4M in FY2024
143 grants totaling $8.4M in FY2024 — showing the 15 largest. All grants made by Amyotrophic Lateral Sclerosis Assn →
| Recipient | Purpose | Amount |
|---|---|---|
| University of Miami | Bitner plante quarterly grant fy25 | $652,154 |
| University Medical Service Association Inc | Bitner plante quarterly grant fy25 | $551,417 |
| Mayo Clinic | Bitner plante quarterly grant fy25 | $426,327 |
| American Brain Foundation | Clinical scientist development award/clinical research training fellowship/shelia essey award | $323,000 |
| Modulo Bio Inc | Drug development contract | $250,000 |
| Asha Therapeutics | Drug development contract | $250,000 |
| Projenx Inc | Clinical trial award | $247,700 |
| Nova Southeastern University Inc | Bitner plante quarterly grant fy25 | $239,332 |
| Everylife Foundation For Rare Diseases | Scholarships | $210,711 |
| Mass General Brigham Incorporated | Drug development contract | $200,000 |
| Picasso Intelligence | Assistive technology | $199,411 |
| Taconic Biosciences Inc | Strategic initiative | $167,202 |
| Orlando Health Inc | Bitner plante quarterly grant fy25 | $165,421 |
| Samsara Therapeutics Ltd | Drug development contract | $150,000 |
| Holy Cross Hospital Inc | Bitner plante quarterly grant fy25/annual grant payment fy25 center of excellence/research | $147,101 |
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Compare Amyotrophic Lateral Sclerosis Assn
Frequently asked questions
- Is Amyotrophic Lateral Sclerosis Assn a legitimate nonprofit?
- Yes. Amyotrophic Lateral Sclerosis Assn is a 501(c)(3) organization registered with the U.S. Internal Revenue Service under EIN 13-3271855, based in Saint Paul, Minnesota. Donations are tax-deductible.
- What is Amyotrophic Lateral Sclerosis Assn's EIN?
- Amyotrophic Lateral Sclerosis Assn's Employer Identification Number (EIN) is 13-3271855.
- How much revenue does Amyotrophic Lateral Sclerosis Assn report?
- Amyotrophic Lateral Sclerosis Assn reported $68,583,051 in total revenue on its fiscal year 2024 IRS Form 990 filing.
- How much of Amyotrophic Lateral Sclerosis Assn's spending goes to programs?
- Amyotrophic Lateral Sclerosis Assn spends about 69% of its total expenses on programs, based on its latest IRS Form 990.
- What financial grade does Amyotrophic Lateral Sclerosis Assn have?
- CharityIndex grades Amyotrophic Lateral Sclerosis Assn B+, based on program efficiency and fundraising cost.
- How much does Amyotrophic Lateral Sclerosis Assn's highest-paid employee make?
- The highest reported compensation on Amyotrophic Lateral Sclerosis Assn's latest Form 990 is $491,499, paid to Calaneet Balas (President and Ceo).
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Data for Amyotrophic Lateral Sclerosis Assn (EIN 13-3271855) comes from the IRS Business Master File and e-filed Form 990 returns, via CharityIndex. Figures reflect what the organization reported to the IRS for each fiscal year.