The Ehlers-danlos Society is a 501(c)(3) organization based in New York, New York, registered in 1988, with $4,956,939 in FY2024 revenue. CharityIndex grades it B.
Revenue (FY2024)
$5.0M
▼ 49.2% vs prior year
Health median: $840K
Expenses (FY2024)
$4.5M
Net assets
$7.7M
Employees
—
Rated on 2 of 4 criteria — the rest aren't reported in this filing type.
Held down by its weakest criterion — a strong score on one criterion can't hide a weak one.
How the rating works →Measures how much of every dollar spent actually reaches programs, plus what it costs to raise $100 of donations. The worse of the two measures sets the letter (85%+ to programs is an A; under $15 to raise $100 is an A), averaged over the three most recent filings. Not scored for The Ehlers-danlos Society— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
Measures whether the organization is built to last: how many months its reserves would cover expenses (3+ months earns an A-range score, but hoarding 5+ years of budget is capped) and whether it runs a surplus or a deficit. For The Ehlers-danlos Society: 20 mo reserves · +9% margin earns a A on this criterion. See the exact thresholds →
Checks how the organization is run, from its own Form 990: an independent board majority, a board of five or more, conflict-of-interest, whistleblower and document-retention policies, and independently audited financials. The share of disclosed checks that pass sets the letter. Not scored for The Ehlers-danlos Society— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
Counts five disclosure signals: a recent filing, a mission statement, program descriptions, a listed website, and the full expense breakdown. More disclosure, better letter. For The Ehlers-danlos Society: 2 of 5 disclosure signals earns a C on this criterion. See the exact thresholds →
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Revenue grew from $798K (FY2013) to $5.0M (FY2024) across 11 reported years.
Financial snapshot
Operating margin
8.9%
Revenue exceeded expenses in the latest fiscal year.
Total assets
$8.2M
Total liabilities
$529K
Net assets
$7.7M
| Fiscal year | Revenue | Expenses | Net assets | Total assets | Form |
|---|---|---|---|---|---|
| 2024 | $4,956,939▼49.2% | $4,515,627▼12.9% | $7,673,778▲6.3% | $8,202,898▼6.1% | 990 |
| 2023 | $9,764,053▲116% | $5,185,571▲26.9% | $7,220,258▲173% | $8,734,113▲174% | 990 |
| 2022 | $4,514,528▲6.5% | $4,085,098▲19.0% | $2,641,812▲19.7% | $3,182,723▲12.9% | 990 |
| 2021 | $4,237,967▲90.0% | $3,433,295▲104% | $2,207,746▲66.9% | $2,819,867▲28.7% | 990 |
| 2020 | $2,230,715▲38.8% | $1,684,441▼1.4% | $1,322,772▲372% | $2,191,805▲239% | 990 |
| 2018 | $1,606,827▲68.7% | $1,707,982▲180% | $280,251▼26.5% | $645,814▲31.3% | 990 |
| 2017 | $952,561▲32.7% | $609,119▼20.2% | $381,406▲905% | $491,682▲99.1% | 990 |
| 2016 | $717,936▲43.0% | $763,042▲25.8% | $37,964▼54.6% | $246,946▼67.9% | 990 |
| 2015 | $502,176▼47.9% | $606,659▲59.3% | $83,563▼55.7% | $770,027▼25.7% | 990 |
| 2014 | $964,115▲20.8% | $380,783▼72.0% | $188,486▲148% | $1,036,917▲47.9% | 990 |
| 2013 | $798,085 | $1,361,206▲426% | -$394,846▼335% | $700,862▲316% | 990 |
| 2012 | — | $258,764 | $168,275 | $168,451 | 990 |
Original Form 990 PDFs (the Form column) are served by ProPublica Nonprofit Explorer, as filed with the IRS. Create a free account to download the CSV report.
42 grants to The Ehlers-danlos Society totaling $5.3M, reported by foundations on their Schedule I filings — showing the 15 most recent.
| Grantmaker | Purpose | Year | Amount |
|---|---|---|---|
| Network For Good Inc | Unrestricted | 2024 | $185,160 |
| Paypal Charitable Giving Fund | General support | 2024 | $80,302 |
| American Online Giving Foundation Inc | General support | 2024 | $33,890 |
| Gs Donor Advised Philanthropy Fund For Wealth Management Inc | Medical / public services | 2024 | $10,000 |
| Raymond James Charitable Endowment Fund | General support | 2024 | $5,000 |
| Vanguard Charitable Endowment Program | For recipient's exempt purpose | 2023 | $2,415,700 |
| Network For Good Inc | Unrestricted | 2023 | $315,306 |
| American Online Giving Foundation Inc | General support | 2023 | $36,486 |
| Paypal Charitable Giving Fund | — | 2023 | $18,759 |
| The Community Foundation Inc | Health and wellness | 2023 | $12,500 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2023 | $9,072 |
| Donor Advised Charitable Giving | Health | 2023 | $5,650 |
| Network For Good Inc | Unrestricted | 2022 | $201,436 |
| American Online Giving Foundation Inc | General support | 2022 | $42,339 |
| Vanguard Charitable Endowment Program | For recipient's exempt purpose | 2022 | $27,981 |
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Data for The Ehlers-danlos Society (EIN 38-2813140) comes from the IRS Business Master File and e-filed Form 990 returns, via CharityIndex. Figures reflect what the organization reported to the IRS for each fiscal year.