Prader-willi Syndrome Association
501(c)(3) Donations tax-deductible
Only null% goes to programs Strong reserves
Prader-willi Syndrome Association is a 501(c)(3) organization based in Brandon, Florida, registered in 1977, with $1,585,370 in FY2024 revenue. CharityIndex grades it B.
1032 E Brandon Blvd 4744, Brandon, FL, 33511 EIN 41-1306908 Since 1977
Revenue (FY2024)
$1.6M
▲ 0.5% vs prior year
Expenses (FY2024)
$1.6M
Net assets
$2.9M
Employees
—
CharityIndex rating
One independent A+ to F grade from four published criteria, each scored separately from IRS filings and combined by weight.
B
★★★★
Rated on 2 of 4 criteria — the rest aren't reported in this filing type.
Held down by its weakest criterion — a strong score on one criterion can't hide a weak one.
How the rating works →—Program efficiency40% of the ratingNo expense breakdown in filings
Measures how much of every dollar spent actually reaches programs, plus what it costs to raise $100 of donations. The worse of the two measures sets the letter (85%+ to programs is an A; under $15 to raise $100 is an A), averaged over the three most recent filings. Not scored for Prader-willi Syndrome Association— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
AFinancial health25% of the rating22 mo reserves · +1% margin
Measures whether the organization is built to last: how many months its reserves would cover expenses (3+ months earns an A-range score, but hoarding 5+ years of budget is capped) and whether it runs a surplus or a deficit. For Prader-willi Syndrome Association: 22 mo reserves · +1% margin earns a A on this criterion. See the exact thresholds →
—Governance25% of the ratingNot reported in this filing type
Checks how the organization is run, from its own Form 990: an independent board majority, a board of five or more, conflict-of-interest, whistleblower and document-retention policies, and independently audited financials. The share of disclosed checks that pass sets the letter. Not scored for Prader-willi Syndrome Association— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
CTransparency10% of the rating2 of 5 disclosure signals
Counts five disclosure signals: a recent filing, a mission statement, program descriptions, a listed website, and the full expense breakdown. More disclosure, better letter. For Prader-willi Syndrome Association: 2 of 5 disclosure signals earns a C on this criterion. See the exact thresholds →
Show this grade on your website
A live seal — it updates automatically when the grade changes and links donors to this verified profile.
Contact & location
Financial trends
Revenue grew from $1.2M (FY2013) to $1.6M (FY2024) across 12 reported years.
Financial snapshot
Financial health & position (FY2024)
Liabilities $779KNet assets $2.9M
Operating margin
1.2%
Revenue exceeded expenses in the latest fiscal year.
Total assets
$3.7M
Total liabilities
$779K
Net assets
$2.9M
Financials by year
| Fiscal year | Revenue | Expenses | Net assets | Total assets | Form |
|---|---|---|---|---|---|
| 2024 | $1,585,370▲0.5% | $1,567,125▼15.2% | $2,900,296▲7.5% | $3,678,825▲33.6% | 990 |
| 2023 | $1,577,352▼29.7% | $1,847,424▲18.8% | $2,698,623▼2.5% | $2,753,019▼4.4% | 990 |
| 2022 | $2,242,320▲30.4% | $1,555,709▲25.6% | $2,767,991▲16.0% | $2,880,192▲18.0% | 990 |
| 2021 | $1,719,245▲41.0% | $1,238,362▲3.2% | $2,386,556▲31.7% | $2,440,137▲27.1% | 990 |
| 2020 | $1,219,448▼18.6% | $1,200,266▼30.6% | $1,812,405▲11.8% | $1,920,086▼12.7% | 990 |
| 2019 | $1,498,022▲18.7% | $1,730,503▲41.4% | $1,620,841▼2.3% | $2,200,383▲20.2% | 990 |
| 2018 | $1,261,658▼8.6% | $1,223,962▼39.4% | $1,659,294▼6.2% | $1,829,880▼11.8% | 990 |
| 2017 | $1,379,822▼33.3% | $2,018,842▲39.8% | $1,768,174▼25.2% | $2,074,188▼14.8% | 990 |
| 2016 | $2,069,104▲12.2% | $1,443,614▼0.7% | $2,363,181▲35.8% | $2,434,992▲23.0% | 990 |
| 2015 | $1,844,062▲35.7% | $1,454,509▲20.3% | $1,739,576▲23.1% | $1,980,049▲31.0% | 990 |
| 2014 | $1,358,953▲12.4% | $1,208,873▼16.1% | $1,412,894▲11.6% | $1,512,024▲9.9% | 990 |
| 2013 | $1,209,510 | $1,440,266▲32.8% | $1,266,074▼9.8% | $1,375,285▼6.7% | 990 |
| 2012 | — | $1,084,482▼16.3% | $1,403,298▼1.4% | $1,474,573▼4.1% | 990 |
| 2011 | — | $1,295,246▲21.5% | $1,423,310▼5.4% | $1,537,043▼1.0% | 990 |
| 2010 | — | $1,066,430 | $1,504,693 | $1,552,155 | 990 |
Original Form 990 PDFs (the Form column) are served by ProPublica Nonprofit Explorer, as filed with the IRS. Create a free account to download the CSV report.
Grants received · $2.5M total
75 grants to Prader-willi Syndrome Association totaling $2.5M, reported by foundations on their Schedule I filings — showing the 15 most recent.
| Grantmaker | Purpose | Year | Amount |
|---|---|---|---|
| The Pittsburgh Foundation | Medical research | 2024 | $100,000 |
| Greater Cincinnati Foundation | Programatic support | 2024 | $20,000 |
| Greater Cincinnati Foundation | Programatic support | 2024 | $20,000 |
| Paypal Charitable Giving Fund | General support | 2024 | $18,545 |
| American Endowment Foundation | Disease/disorder | 2024 | $14,500 |
| Give Back Foundation | Program support | 2024 | $8,748 |
| American Online Giving Foundation Inc | General support | 2024 | $7,192 |
| The Pittsburgh Foundation | Birth defects and genetic diseases research | 2023 | $213,600 |
| Donor Advised Charitable Giving | Health | 2023 | $73,950 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2023 | $22,840 |
| Paypal Charitable Giving Fund | — | 2023 | $12,133 |
| Give Back Foundation | Program support | 2023 | $8,748 |
| American Endowment Foundation | Disease/disorder | 2023 | $7,500 |
| American Online Giving Foundation Inc | General support | 2023 | $6,536 |
| The Pittsburgh Foundation | Eating disorders and addictions | 2022 | $202,000 |
Frequently asked questions
- Is Prader-willi Syndrome Association a legitimate nonprofit?
- Yes. Prader-willi Syndrome Association is a 501(c)(3) organization registered with the U.S. Internal Revenue Service under EIN 41-1306908, based in Brandon, Florida. Donations are tax-deductible.
- What is Prader-willi Syndrome Association's EIN?
- Prader-willi Syndrome Association's Employer Identification Number (EIN) is 41-1306908.
- How much revenue does Prader-willi Syndrome Association report?
- Prader-willi Syndrome Association reported $1,585,370 in total revenue on its fiscal year 2024 IRS Form 990 filing.
- What financial grade does Prader-willi Syndrome Association have?
- CharityIndex grades Prader-willi Syndrome Association B, based on financial health (reserves and operating margin).
More nonprofits in Brandon
Explore more
Data for Prader-willi Syndrome Association (EIN 41-1306908) comes from the IRS Business Master File and e-filed Form 990 returns, via CharityIndex. Figures reflect what the organization reported to the IRS for each fiscal year.