Lymphangiomatosis & Gorhams Disease Alliance Inc is a 501(c)(3) organization based in Saint Petersburg, Florida, registered in 2008, with $118,890 in FY2024 revenue. CharityIndex grades it D.
Revenue (FY2024)
$119K
▼ 56.1% vs prior year
Diseases median: $206K
Expenses (FY2024)
$153K
Net assets
$345K
Employees
—
Measures how much of every dollar spent actually reaches programs, plus what it costs to raise $100 of donations. The worse of the two measures sets the letter (85%+ to programs is an A; under $15 to raise $100 is an A), averaged over the three most recent filings. Not scored for Lymphangiomatosis & Gorhams Disease Alliance Inc— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
Measures whether the organization is built to last: how many months its reserves would cover expenses (3+ months earns an A-range score, but hoarding 5+ years of budget is capped) and whether it runs a surplus or a deficit. For Lymphangiomatosis & Gorhams Disease Alliance Inc: 27 mo reserves · -29% margin earns a D on this criterion. See the exact thresholds →
Checks how the organization is run, from its own Form 990: an independent board majority, a board of five or more, conflict-of-interest, whistleblower and document-retention policies, and independently audited financials. The share of disclosed checks that pass sets the letter. Not scored for Lymphangiomatosis & Gorhams Disease Alliance Inc— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
Counts five disclosure signals: a recent filing, a mission statement, program descriptions, a listed website, and the full expense breakdown. More disclosure, better letter. For Lymphangiomatosis & Gorhams Disease Alliance Inc: 2 of 5 disclosure signals earns a C on this criterion. See the exact thresholds →
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Revenue grew from $88K (FY2012) to $119K (FY2024) across 9 reported years.
Financial snapshot
Operating margin
-28.8%
Spent more than it raised in the latest fiscal year.
Total assets
$354K
Total liabilities
$9,279
Net assets
$345K
| Fiscal year | Revenue | Expenses | Net assets | Total assets | Form |
|---|---|---|---|---|---|
| 2024 | $118,890▼56.1% | $153,100▼50.7% | $344,546▼9.0% | $353,825▼8.4% | 990EZ |
| 2023 | $271,042▲123% | $310,725▲10.6% | $378,745▼9.6% | $386,253▼8.4% | 990 |
| 2022 | $121,403▼62.3% | $280,940▼12.1% | $418,917▼27.6% | $421,865▼27.2% | 990EZ |
| 2021 | $321,718▼0.4% | $319,777▲51.3% | $578,870▼11.9% | $579,142▼12.6% | 990 |
| 2020 | $323,008▲0.9% | $211,390▲99.3% | $657,077▲20.5% | $662,607▲19.8% | 990 |
| 2019 | $320,054▲160% | $106,049▼19.5% | $545,469▲61.4% | $552,913▲59.5% | 990 |
| 2018 | $123,025▲125% | $131,666▲85.6% | $338,040▼2.5% | $346,747▼3.1% | 990EZ |
| 2017 | $54,654▼37.6% | $70,941▲48.7% | $346,681▲267% | $357,765▲278% | 990EZ |
| 2012 | $87,547 | $47,717 | $94,526 | $94,526 | 990EZ |
Original Form 990 PDFs (the Form column) are served by ProPublica Nonprofit Explorer, as filed with the IRS. Create a free account to download the CSV report.
6 grants to Lymphangiomatosis & Gorhams Disease Alliance Inc totaling $639K, reported by foundations on their Schedule I filings.
| Grantmaker | Purpose | Year | Amount |
|---|---|---|---|
| Paypal Charitable Giving Fund | General support | 2024 | $5,432 |
| Silicon Valley Community Foundation | Health | 2022 | $150,000 |
| Silicon Valley Community Foundation | Health | 2020 | $465,000 |
| Network For Good Inc | Unrestricted | 2018 | $6,542 |
| Global Impact | Donor advised fund | 2017 | $5,294 |
| Paypal Charitable Giving Fund | General support | 2015 | $6,968 |
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Data for Lymphangiomatosis & Gorhams Disease Alliance Inc (EIN 26-1224181) comes from the IRS Business Master File and e-filed Form 990 returns, via CharityIndex. Figures reflect what the organization reported to the IRS for each fiscal year.