Ehlers-danlos Research Foundation is a 501(c)(3) organization based in Pikesville, Maryland, registered in 2020, with $120,676 in FY2024 revenue. CharityIndex grades it D.
Revenue (FY2024)
$121K
▼ 57.1% vs prior year
Medical Research median: $217K
Expenses (FY2024)
$239K
Net assets
$293K
Employees
—
Measures how much of every dollar spent actually reaches programs, plus what it costs to raise $100 of donations. The worse of the two measures sets the letter (85%+ to programs is an A; under $15 to raise $100 is an A), averaged over the three most recent filings. Not scored for Ehlers-danlos Research Foundation— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
Measures whether the organization is built to last: how many months its reserves would cover expenses (3+ months earns an A-range score, but hoarding 5+ years of budget is capped) and whether it runs a surplus or a deficit. For Ehlers-danlos Research Foundation: 15 mo reserves · -98% margin earns a F on this criterion. See the exact thresholds →
Checks how the organization is run, from its own Form 990: an independent board majority, a board of five or more, conflict-of-interest, whistleblower and document-retention policies, and independently audited financials. The share of disclosed checks that pass sets the letter. Not scored for Ehlers-danlos Research Foundation— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
Counts five disclosure signals: a recent filing, a mission statement, program descriptions, a listed website, and the full expense breakdown. More disclosure, better letter. For Ehlers-danlos Research Foundation: 2 of 5 disclosure signals earns a C on this criterion. See the exact thresholds →
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Revenue grew from $109K (FY2020) to $121K (FY2024) across 5 reported years.
Financial snapshot
Operating margin
-98.0%
Spent more than it raised in the latest fiscal year.
Total assets
$293K
Total liabilities
$0
Net assets
$293K
| Fiscal year | Revenue | Expenses | Net assets | Total assets | Form |
|---|---|---|---|---|---|
| 2024 | $120,676▼57.1% | $238,943▼28.8% | $293,252▼28.7% | $293,252▼28.7% | 990 |
| 2023 | $281,141▲32.0% | $335,642▲395% | $411,519▼11.7% | $411,519▼11.7% | 990 |
| 2022 | $213,055▼29.4% | $67,840▼12.6% | $466,020▲45.3% | $466,020▲45.3% | 990 |
| 2021 | $301,721▲176% | $77,590▲508% | $320,805▲232% | $320,805▲229% | 990 |
| 2020 | $109,431 | $12,758 | $96,673 | $97,416 | 990EZ |
Original Form 990 PDFs (the Form column) are served by ProPublica Nonprofit Explorer, as filed with the IRS. Create a free account to download the CSV report.
18 grants to Ehlers-danlos Research Foundation totaling $455K, reported by foundations on their Schedule I filings — showing the 15 most recent.
| Grantmaker | Purpose | Year | Amount |
|---|---|---|---|
| Network For Good Inc | Unrestricted | 2024 | $10,853 |
| American Online Giving Foundation Inc | General support | 2024 | $9,446 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2023 | $112,050 |
| Network For Good Inc | Unrestricted | 2023 | $56,683 |
| American Online Giving Foundation Inc | General support | 2023 | $12,127 |
| American Endowment Foundation | Disease/disorder | 2023 | $10,000 |
| Paypal Charitable Giving Fund | — | 2023 | $5,026 |
| Network For Good Inc | Unrestricted | 2022 | $50,043 |
| American Online Giving Foundation Inc | General support | 2022 | $13,818 |
| American Endowment Foundation | Disease/disorder | 2022 | $11,800 |
| Ayco Charitable Foundation | Medical / public services | 2021 | $100,000 |
| Network For Good Inc | Unrestricted | 2021 | $10,719 |
| American Endowment Foundation | Disease/disorder | 2021 | $10,000 |
| Donor Advised Charitable Giving | Health | 2021 | $5,250 |
| Donor Advised Charitable Giving | Health | 2020 | $10,100 |
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Data for Ehlers-danlos Research Foundation (EIN 84-4482546) comes from the IRS Business Master File and e-filed Form 990 returns, via CharityIndex. Figures reflect what the organization reported to the IRS for each fiscal year.