Cystinosis Research Foundation
Only null% goes to programs Strong reserves
Cystinosis Research Foundation is a 501(c)(3) organization based in Irvine, California, registered in 2003, with $3,177,424 in FY2024 revenue. CharityIndex grades it B.
19200 Von Karman Ave Ste 920, Irvine, CA, 92612 EIN 32-0067668 Since 2003
Revenue (FY2024)
$3.2M
▼ 0.3% vs prior year
Medical Research median: $217K
Expenses (FY2024)
$3.4M
Net assets
$7.5M
Employees
—
CharityIndex rating
One independent A+ to F grade from four published criteria, each scored separately from IRS filings and combined by weight.
B
—Program efficiency40% of the ratingNo expense breakdown in filings
Measures how much of every dollar spent actually reaches programs, plus what it costs to raise $100 of donations. The worse of the two measures sets the letter (85%+ to programs is an A; under $15 to raise $100 is an A), averaged over the three most recent filings. Not scored for Cystinosis Research Foundation— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
B+Financial health25% of the rating26 mo reserves · -8% margin
Measures whether the organization is built to last: how many months its reserves would cover expenses (3+ months earns an A-range score, but hoarding 5+ years of budget is capped) and whether it runs a surplus or a deficit. For Cystinosis Research Foundation: 26 mo reserves · -8% margin earns a B+ on this criterion. See the exact thresholds →
—Governance25% of the ratingNot reported in this filing type
Checks how the organization is run, from its own Form 990: an independent board majority, a board of five or more, conflict-of-interest, whistleblower and document-retention policies, and independently audited financials. The share of disclosed checks that pass sets the letter. Not scored for Cystinosis Research Foundation— this filing type doesn't report it, and the rating simply skips it (never counts it against the organization). See the exact thresholds →
CTransparency10% of the rating2 of 5 disclosure signals
Counts five disclosure signals: a recent filing, a mission statement, program descriptions, a listed website, and the full expense breakdown. More disclosure, better letter. For Cystinosis Research Foundation: 2 of 5 disclosure signals earns a C on this criterion. See the exact thresholds →
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Contact & location
- Address
- 19200 Von Karman Ave Ste 920, Irvine, CA, 92612
- City
- Irvine
- State
- California
- Category
- Medical Research
- Subcategory
- Organ Research
- Website
- …
Financial trends
Revenue declined from $3.3M (FY2013) to $3.2M (FY2024) across 12 reported years.
Financial snapshot
Financial health & position (FY2024)
Liabilities $2.5MNet assets $7.5M
Operating margin
-8.2%
Spent more than it raised in the latest fiscal year.
Total assets
$10.0M
Total liabilities
$2.5M
Net assets
$7.5M
Financials by year
| Fiscal year | Revenue | Expenses | Net assets | Total assets | Form |
|---|---|---|---|---|---|
| 2024 | $3,177,424▼0.3% | $3,438,007▼17.3% | $7,522,531▼2.9% | $10,029,960▼3.7% | 990 |
| 2023 | $3,187,305▼1.8% | $4,157,212▲44.8% | $7,746,091▼10.6% | $10,415,384▲1.1% | 990 |
| 2022 | $3,244,975▼9.6% | $2,871,720▼6.5% | $8,662,516▲5.3% | $10,305,666▲1.3% | 990 |
| 2021 | $3,589,447▼5.8% | $3,072,713▼11.5% | $8,226,159▼3.0% | $10,168,657▼1.7% | 990 |
| 2020 | $3,809,513▼11.6% | $3,470,840▲3.2% | $8,482,442▲12.4% | $10,349,578▲5.1% | 990 |
| 2019 | $4,308,424▼20.3% | $3,362,690▼42.7% | $7,549,724▲10.7% | $9,847,694▲1.6% | 990 |
| 2018 | $5,402,719▲16.0% | $5,870,413▲37.5% | $6,817,282▼0.2% | $9,691,493▲6.3% | 990 |
| 2017 | $4,655,704▼4.2% | $4,270,333▲40.6% | $6,832,501▲51.1% | $9,121,015▲44.2% | 990 |
| 2016 | $4,857,558▲48.0% | $3,037,548▲8.5% | $4,522,420▲75.0% | $6,325,183▲32.3% | 990 |
| 2015 | $3,282,703▼4.6% | $2,798,362▼9.8% | $2,583,973▲18.9% | $4,779,733▲6.6% | 990 |
| 2014 | $3,439,384▲4.2% | $3,103,620▲26.8% | $2,173,506▲13.7% | $4,481,739▲21.1% | 990 |
| 2013 | $3,299,549 | $2,447,190▼23.7% | $1,911,063▲90.7% | $3,700,806▲12.6% | 990 |
| 2012 | — | $3,206,982 | $1,002,009 | $3,287,069 | 990 |
Original Form 990 PDFs (the Form column) are served by ProPublica Nonprofit Explorer, as filed with the IRS. Create a free account to download the CSV report.
Grants received · $4.4M total
62 grants to Cystinosis Research Foundation totaling $4.4M, reported by foundations on their Schedule I filings — showing the 15 most recent.
| Grantmaker | Purpose | Year | Amount |
|---|---|---|---|
| American Online Giving Foundation Inc | General support | 2024 | $57,917 |
| Paypal Charitable Giving Fund | General support | 2024 | $14,706 |
| Charities Aid Foundation America | Charitable donation | 2024 | $6,607 |
| Donor Advised Charitable Giving | Health | 2023 | $47,500 |
| Paypal Charitable Giving Fund | — | 2023 | $38,777 |
| Orange County Community Foundation | Health and wellness | 2023 | $15,500 |
| American Online Giving Foundation Inc | General support | 2023 | $13,427 |
| Donor Advised Charitable Giving | Health | 2022 | $81,500 |
| Orange County Community Foundation | Health and wellness | 2022 | $72,500 |
| Fidelity Investments Charitable Gift Fund | For grant recipient's exempt purposes | 2022 | $39,541 |
| Jewish Community Federation of S F Marin Peninsula & Sonoma Counties | Health | 2022 | $25,000 |
| American Online Giving Foundation Inc | General support | 2022 | $19,178 |
| Vanguard Charitable Endowment Program | For recipient's exempt purpose | 2022 | $8,500 |
| Morgan Stanley Global Impact Funding Trust Inc | Unrestricted general support | 2022 | $5,000 |
| American Endowment Foundation | Medical research | 2022 | $5,000 |
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Frequently asked questions
- Is Cystinosis Research Foundation a legitimate nonprofit?
- Yes. Cystinosis Research Foundation is a 501(c)(3) organization registered with the U.S. Internal Revenue Service under EIN 32-0067668, based in Irvine, California. Donations are tax-deductible.
- What is Cystinosis Research Foundation's EIN?
- Cystinosis Research Foundation's Employer Identification Number (EIN) is 32-0067668.
- How much revenue does Cystinosis Research Foundation report?
- Cystinosis Research Foundation reported $3,177,424 in total revenue on its fiscal year 2024 IRS Form 990 filing.
- What financial grade does Cystinosis Research Foundation have?
- CharityIndex grades Cystinosis Research Foundation B, based on financial health (reserves and operating margin).
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Data for Cystinosis Research Foundation (EIN 32-0067668) comes from the IRS Business Master File and e-filed Form 990 returns, via CharityIndex. Figures reflect what the organization reported to the IRS for each fiscal year.